€150

Setting up a GDPR-compliant data collection and processing pipeline

Actions and Detail Panel

€150

Event Information

Share this event

Date and time

Location

Location

Online event

Refund policy

Refund policy

No Refunds

Event description
The GDPR legal basis options, strengths and limitations of each, how to choose the most appropriate one for the anticipated needs.

About this event

Webinar 2: Setting up a GDPR-compliant data collection and processing pipeline

What are the GDPR compliance steps and specifications that should be adopted when developing an innovation or a research study that collects, processes, retains, analyses and possibly shares health data from patients, citizens, or research data subjects? We explore this area from the contractual and practical, governance and data management and research requirements perspectives.

Topics covered include: Exploration of the practicalities involved in planning and implementation of data pipelines to support research and innovation. This includes the importance of understanding who the parties are responsible for developing the sharing and receipt of data, their roles and responsibilities, how data will be shared and stored, under what legal bases, the obligations on each party as a result and the role of contracts and agreements to formalize these arrangements. What agreements and approvals are usually needed in the context of conducting research or data sharing, what documentation evidence do these require, what are the main issues in agreeing to data sharing across partners and regulators, and what is needed to successfully complete a European Commission grant proposal ethics section. This session will focus on the practicalities of setting up and running a research database and consider the differences across national jurisdictions.

Date: 28/09/2021      Time: 14.00 CEST         Duration: 2 hours

Speakers:

  • Nathan Lea
  • Maria Christofidou
  • Evelyn Fox
  • Liesbet Pieters

i~HD webinar series 2021: GDPR for tomorrow's health data-driven innovation

It has been over three years since the arrival of the General Data Protection Regulation and the number and scale of health data driven research infrastructures and opportunities across Europe continue to grow. Join i~HD and its experts from across the health research and innovation sector for a series of webinars on how to successfully harness GDPR to meet health data reuse challenges and drive innovation into the next decade.

Our webinar series will offer you an exclusive insight into the GDPR's impact on health data driven research and innovation as experienced by experts from across the health innovation sector. The speakers, working in the legal, ethical, ICT, data management and patient representative professions, will share their knowledge and experience on key aspects of data protection in the field of healthcare innovation. They will discuss and explore practical experience and solutions, best practices and approaches for compliance, data breach management, failures and prosecutions, meaningful public engagement, security, novel technologies and forthcoming regulation (including the AI Regulation and Data Governance Act) and more.

What can you learn from our GDPR Webinar Series? These are the questions we will address:

  • How does GDPR impact on the collection, storage and uses of health data?
  • What are the steps required to develop a GDPR-compliant health data pipeline? 
  • How can you use a Data Protection Impact Assessment to enhance your data handling?
  • What safeguards does the GDPR require when capturing, analysing or sharing data?
  • What are good practices when drafting consent forms, information leaflets and meaningful transparency notices?
  • What codes of conduct should your staff adopt when working with health data?
  • How can you protect against data breaches and their penalties?
  • What are the implications of pseudonymisation and anonymous data use for research and what are the best approaches?
  • How can we develop next generation data analytics complying with the GDPR with a view on the forthcoming AI Regulation and Data Governance Act?

Who should attend?

  • Patient organisations
  • Health care providers
  • Pharma & life sciences
  • Health ICT and data driven industry
  • Health & data strategy organisations
  • Academia & research centres
  • Standards & certification bodies

Visit the i~HD website for more information.

Share with friends

Date and time

Location

Online event

Refund policy

No Refunds

{ _('Organizer Image')}

Organiser i~HD

Organiser of Setting up a GDPR-compliant data collection and processing pipeline

Health data has the potential to catalyse smarter health care and efficient research . We need to urgently ramp up our learning by creating and combining high-quality health data, and its trustworthy uses. As a neutral, multi-stakeholder institute The European Institute for Innovation through Health Data strives to maximise community value from health data. That is why we promote, develop and share good practices and tools and perform quality assessments.

Save This Event

Event Saved