Balancing Life with OI - OIFE Topical Meeting

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Balancing Life with OI - OIFE Topical Meeting

“Balancing life with OI” will focus on factors that influence balance in life for people with the rare condition osteogenesis imperfecta.

When and where

Date and time

Location

Scandic Continental 22 Vasagatan 111 20 Norrmalm Sweden

Map and directions

How to get there

Refund Policy

No Refunds

About this event

  • 1 day 7 hours
  • Mobile eTicket

This 2 day international conference is aimed at anyone with an interest in Osteogenesis Imperfecta.

It is also the first conference of its kind to cover topics such as: pain, fatigue, sleep, mobility, family, relationships and more.

The topical meeting will offer arenas to present newer research, treatment methods and news related to these topics. We will include assessment, measurement (in the clinic and clinical trials) and management of physical and psychological challenges due to the mentioned factors.

Anyone interested in the topics is welcome to attend. This includes:

    • Clinicians & researchers with an interest in OI in general
    • Clinicians & researchers with an interest in pain, fatigue, sleep and mobility etc
    • OI- and rare bone community (people with OI and other rare bone conditions, family members, staff and volunteers)
    • Professionals connected to other rare bone conditions
    • Industry representatives

The conference will be a co-operation between the OIFE and the Swedish OI-organization SFOI.

Full Agenda to follow

Starting Time Friday 9th June 09.00

Finish time Saturday 10th June 16.00

OIFE ANNUAL GENERAL MEETING

The OIFE Annual General Meeting (AGM) will take place Saturday 10th and Sunday the 11th of June. Anyone from our member organizations can attend the OIFE AGM, but only official OIFE delegates from European member organizations have a vote. In addition, OIFE volunteers, professionals and other people with an interest in OIFE can be invited. The formal part of the AGM will take place on Saturday afternoon (16.30 - 19.00) and on Sunday we will do workshops on strategy and other relevant topics. The ticket price for the OIFE AGM is 60 euros and it includes the meeting, dinner on Saturday night and grab & go lunch on Sunday. There is a discount for 2 official delegates per OIFE member organizations. Contact the organizers if you haven't received a discount code.

SFOI MEMBERSHIP MEETING

The SFOI meeting is primarily for adult members of the Swedish OI-organization – both people with OI and parents of OI-children. Only member swho have paid the SFOI fee for 2023 can attend against a fee of 50 euros. Central professionals can ask to be invited to the lectures (but not the meals).

Saturday will offer lectures from professionals and parents of children with OI. Sunday will offer peer groups and a meeting to discuss the future of the Swedish OI-organisation.