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Anonymisation and pseudonymisation

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An important protection of data is anonymisation, potentially making the data non-personal and therefore no longer within the scope of GDPR

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Webinar 5: Anonymisation and pseudonymisation

In this session we explore the definitions of both these forms of data minimisation, the practical implementations and the implications for conducting research. We will consider quantifying privacy risk and how to mitigate against it without rendering datasets useless for research. We consider the question: how can we balance privacy protection using anonymisation and pseudonymisation with the need to ensure we can ask pertinent research questions?

Topics covered include: Why anonymisation is useful with regard to GDPR and data protection, and how this aids compliance with data minimisation. Practicalities around the principles and main methods for anonymisation, examples of data transformation rules that can be applied. We also review privacy risk and its quantification, including disclosure controls that need to be adopted on top of data anonymisation. Why is pseudonymisation useful, principles, the main methods adopted, protecting pseudonymisation keys, managing longitudinal linkage. We explore the implications for research Q&A from the audience.

Date: 15/11/2021       Time: 14.00 CEST         Duration: 2 hours

Speakers:

  • Nathan Lea
  • Maria Christofidou
  • Peter Singleton
  • Mark Little
  • Privacy Protection Expert

i~HD webinar series 2021: GDPR for tomorrow's health data-driven innovation

It has been over three years since the arrival of the General Data Protection Regulation and the number and scale of health data driven research infrastructures and opportunities across Europe continue to grow. Join i~HD and its experts from across the health research and innovation sector for a series of webinars on how to successfully harness GDPR to meet health data reuse challenges and drive innovation into the next decade.

Our webinar series will offer you an exclusive insight into the GDPR's impact on health data driven research and innovation as experienced by experts from across the health innovation sector. The speakers, working in the legal, ethical, ICT, data management and patient representative professions, will share their knowledge and experience on key aspects of data protection in the field of healthcare innovation. They will discuss and explore practical experience and solutions, best practices and approaches for compliance, data breach management, failures and prosecutions, meaningful public engagement, security, novel technologies and forthcoming regulation (including the AI Regulation and Data Governance Act) and more.

What can you learn from our GDPR Webinar Series? These are the questions we will address:

  • How does GDPR impact on the collection, storage and uses of health data?
  • What are the steps required to develop a GDPR-compliant health data pipeline? 
  • How can you use a Data Protection Impact Assessment to enhance your data handling?
  • What safeguards does the GDPR require when capturing, analysing or sharing data?
  • What are good practices when drafting consent forms, information leaflets and meaningful transparency notices?
  • What codes of conduct should your staff adopt when working with health data?
  • How can you protect against data breaches and their penalties?
  • What are the implications of pseudonymisation and anonymous data use for research and what are the best approaches?
  • How can we develop next generation data analytics complying with the GDPR with a view on the forthcoming AI Regulation and Data Governance Act?

Who should attend?

  • Patient organisations
  • Health care providers
  • Pharma & life sciences
  • Health ICT and data driven industry
  • Health & data strategy organisations
  • Academia & research centres
  • Standards & certification bodies

Visit the i~HD website for more information.

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Organiser i~HD

Organiser of Anonymisation and pseudonymisation

Health data has the potential to catalyse smarter health care and efficient research . We need to urgently ramp up our learning by creating and combining high-quality health data, and its trustworthy uses. As a neutral, multi-stakeholder institute The European Institute for Innovation through Health Data strives to maximise community value from health data. That is why we promote, develop and share good practices and tools and perform quality assessments.

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